Tuesday, 16 December 2008
Dear all of you,
This is just to let you know that the blog has not died - I've just been stuck with a string of deadlines. One of them was for a little article about the blog to go in the Wellcome Trust's brochure, which is called Highlights. Carole Reeves, who is the Wellcome Trust's Outreach officer, and has been very helpful to me over the blog, invited me to do it. Apparently the brochure is distributed all over the world, so we hope it will bring in a new flurry of contributions to the blog. Carole has just sent me a copy of the brochure, just out. It's beautifully produced, and there we are on one of the centre pages. I'm hoping that, like last year's brochure, it will soon be possible to see it on the Wellcome Trust website, though it isn't there yet. I'll let you know when it is so you can go and see it.
Have a very happy Christmas holiday break, and I wish you all the very best for 2009, despite the gloomy outlook.
The Christmassy photo is courtesy of Fred!
Tuesday, 9 September 2008
Friday, 29 August 2008
I started training as an Orthopaedic Nurse at Huddersfield Royal Infirmary, as part of that training you were seconded to MHH, cant remember how long 2 or 4 months. I think only 2 or 3 groups were seconded, and then they were sent to a hospital in Sheffield. At this time (1971) it was not beneficial for nurses from a training point of view.
The staff were very friendly, and a lovely community atmosphere. The hospital had some lovely grounds, but not used. Nothing was locked up and you could go an raid the hospital fridge if you were hungry.
Gerry (Gerald Appleyard) was one of the Charge Nurses and that's how I got to know him.The Matron was called Weddall and her brother worked nights there. He used to make the porridge for breakfast. He had it cooking all through the night. He had a Ford Zephyr car and would go into Boston Spa and get us fish and chips.
Ward 3 was for older boys and Ward 4 younger ones.
Very few Orthopaedic Patients, some babies from Meanwood Hospital who had severe mental disability and stayed in cots all day, they were fed, washed. They had repeated epileptic fits and just awaited the inevitable. Most of their parents never visited.
There was a portacabin on the grass as you went into the grounds, this was
for admin staff.
Monday, 25 August 2008
I came across your blog re. the above hospital. I was a patient from September 1956 to March 1957. I had an orthopaedic problem with my knee. I have lots of happy memories from my stay.
Aged 9 I took a really hard bang on my knee from a roundabout in a children’s playground. In the following 5 years the knee would repeatedly lock and I was back and forwards to Leeds General Infirmary to see an orthopedic specialist.
He eventually admitted me to MH Hospital for 2 weeks observation in September 1956, so that if it locked he would have a "reliable" witness. I thought "Great, 2 weeks off school”, as my Mam and I drove down the lane leading to the hospital in an Ambulance car. I saw all the kids on the veranda doing school work, and my bubble burst! I was 14 years and 2 months old, the next oldest boy was just 12.
MH. Hospital at that time was a probationary training hospital for nurses having to do a 2 year course then going onto larger hospitals, like Leeds General Infirmarly and Pinderfields [in Wakefield]. They started at age 16 then moved on at age 18.
Up to that time I had rarely come into contact with girls and couldn’t understand why I seemed to get more attention than the other kids. There where about 20 boys on ward 2, as it was known then, and I was the only one not confined to bed. I was amazed to find out some of the kids had been in hospital for years, being treated for TB, Polio and Perthe's disease. I became scared in case I caught one of the diseases until I was assured this could not happen.
I spent most of my time picking things up off the floor that had fallen off the other kids’ beds and passing comics, toys and any other item from bed to bed. On the day the orthopaedic specialist visited I was confined to bed. All our case-notes lay at the base of the bed. I picked mine up and tried to read it but couldn’t understand it, until I turned a page, and written across the full page in large letters were the words "TRUTH DOUBTFUL". I felt my face redden and quickly threw the case-notes back on the bed. I suddenly felt so alone and afraid. When the consultant came to me Sister told him I had been very active and very helpful on the ward - in other words there’s nothing wrong with him!
Two days before I would be discharged I was bouncing on my bed when my knee "locked". Ii screamed for Sister, she and 2 nurses came dashing from the office and witnessed my knee locked with a pea sized piece of cartilage protruding from the side of my knee-cap. The outcome was I had an operation, 12 pieces of shattered cartilage were removed (along with "that" page from my case-notes). I spent the next 6 weeks in a plaster cast, groin to ankle, but was still fully mobile, doing all kinds of jobs helping the nurses hand out and collect bed-pans and bottles. One job I enjoyed was rolling up the dozens of bandages on a small mangle like machine after they had been washed - they where used to strap all the kids’ legs into their frames and splints. Thirteen years ago, aged 53, I had a total knee replacement.
Christmas was a great time, with a doctor dressed as Santa handing out presents to us kids. The Registrar was a Mr. Yeomans, the Physio was Miss Anne Berry. I can only remember one nurse who I had a school-boy crush on, Margaret Brett, and Mary the cleaning lady. I have enjoyed writing about my 6 months in M H Hospital and many other memories have come flooding back. I do hope you have enjoyed my small contribution.
Sunday, 24 August 2008
when I promised to come back to it in more detail). So here it is.
It all started when I went to the internet to check some facts about how spinal TB was treated, including the use of plaster beds. I googled “tuberculosis of the spine”, and came across a reference to a film held at the Wellcome Library in London, called “A demonstration by diagram and illustration of preparing anterior and posterior shells in the treatment of tuberculosis of the spine in children”. So I decided to follow it up.
Because the film is very old, you have to view it with a member of the library staff in a special viewing room. So last July I made my first visit to the library – I’ve been a few times since then, and it’s a fascinating place with lots of interesting medical history documents, objects and pictures. My appointment was with Angela Saward, Wellcome’s curator of moving images, and I went with her to view the film in a special viewing room. She made sure I was comfortable and in a position to take notes, and offered to stop the film if I needed time to write, which I did at a couple of points. In fact, I was rather glad to have her there and that the viewing was set up in this rather academic way – it kept me fairly detached from what I was watching, rather than projecting myself into it more personally, as I might have done had I seen it on my own.
It’s a black and white silent film, quite grainy and faded in places, so the only sound effects were the whirring of the projection, and my own hasty scribblings. It was made in 1936 at Abergate Sanatorium,
It shows the making of two plaster beds on a small boy – an “anterior shell”, for him to lie on his front – and a “posterior shell”, for lying on his back. As the film progresses, the different stages of the process are illustrated with diagrams at the bottom of the film. I’ve tried to reproduce some of these to illustrate the stages. My drawing skills are not very sophisticated, but I hope the diagrams will help make the process clear.
The posterior bed they made in the film went up over the child’s head, as though for patients who had upper spinal problems, like some of you who have contributed to the blog. For this, the boy was placed face down on a frame, with a crossbar passing roughly under the stomach, to “ensure a degree of hyperextension of the spine” it said; in other words to keep it stretched and not curving inwards. His legs were bent and the shins and feet were raised by another pair of crossbars, one over the knees and one under the ankles – so that the finished bed would keep his legs slightly bent. (See diagram 1).
Diagram 1: Patient lying face down for making of
Next he was rubbed all over with Vaseline, and his head wrapped in a cloth. Then they laid strips of bandage-cloth impregnated with wet Plaster of Paris on the child’s body in a carefully designed pattern, slightly overlapping and patted down till they all melded into a single piece (see Diagram 2 below).
Diagram 2: Patient lying face down for making of "posterior shell". The numbers show the order in which the strips were placed, and the arrows the direction of the strips
In the film, the first strip went from the bottom of the child’s torso (leaving the behind clear) right up the centre of the back and over the head, and was carefully tucked in to follow the curve of the neck (1). Next came side slabs (2). Then a curved slab was placed round each shoulder just touching onto the central one (3), and another went across all three (sorry, I omitted this from the diagram, and I don’t want to re-scan it). For the legs, a single strip was placed along the back of each leg, from the groin right down to the ankle (4). Then bandages soaked in plaster of Paris were rolled back and forth crossways to this slab, moving from thigh to ankle and creating a curved shell (5). As the different sections were applied, they were smoothed and slathered down very firmly until they form a continuous whole, with seam-lines down them which looked like those on a certain design of dress, or the taped joins of the ‘liberty bodices’ I remember wearing later on.
Finally, presumably when the plaster had dried enough to keep its shape, you saw the whole shell being removed, and placed on a wooden frame. The final frames show the child lying on his back in the plaster bed on the frame.
The process for the anterior bed – made on the front of the body for lying in face down – was pretty similar, except that the child’s legs were straight, and there weren’t any crossbars to maintain the correct position of the spine. In this one, the leg slabs went to just above the knee, with no further bandaging to and fro.
As to how it all relates to what I remember, this is quite a difficult question. Angela asked me if we had been as compliant as this child, who kept so still I thought they must have used a doll – which Angela doubted – or that he was anaesthetized. Both processes, but particularly the one for the ‘posterior bed’, looked extremely uncomfortable, so perhaps anaesthetization was used. Yet I don’t remember any such discomfort, and I was certainly conscious throughout. What I do remember vividly was the feel of the plaster slabs, warm, wet, sticky and smelly, and the slapping and smoothing involved in their application. I imagine the Vaseline-ing must have been a strange sensation, too, though I don’t remember that either. I wonder how they cleaned it off us afterwards – we must have had to have some sort of bed bath, I suppose.
I mentioned this film to Cynthia Coultas when we had a long talk on the phone not long ago. It seems that by the time Cynthia was involved in this process at Thorpe Arch, they used single sheets, rather than strips, laying them over the whole back, or front. Apparently, each patient had an anterior and a posterior bed made, because we had to be turned frequently to prevent bed sores. Funnily enough, I have no memory of being turned, yet from what Cynthia says it must have been quite a frequent process.
So watching the film jogged my memory, but also left me with a whole series of questions. For instance, I wonder what happened to our muscles over so many years of lying flat, and what kind of preparatory physiotherapy we were given before the magic moment when we actually stood up to walk. Without any at all our legs would surely have crumpled under us!
I wonder, too, why I didn’t ask more questions about this all once I’d come out. I suppose at that age children take an awful lot for granted, and don’t question something which, though it appears peculiar with hindsight, was our ‘normality’. Then, coming home, it must have all faded into the background as I moved forward into a new ‘normal life’. I did tend to explain my inability to perform certain physical activities in terms of my having been in hospital – for instance, I always found it very difficult to sit on the ground cross-legged, but really without analysing it too much at all.
Does any of this jog memories for anyone else? Does it contradict your memories, or help fill them in? Or does it jog other memories altogether? Perhaps Cynthia will have a look at this, too, and fill in details from the nursing point of view. Please comment and add details, questions, differences of view, and so on.
Friday, 8 August 2008
Cynthia Coultas gives a nurse’s perspective on visiting limitations, and other aspects of nursing children in the
Rowland’s memories certainly back up the importance of parental input and the reason for modern day thinking and the changes to the care of children in hospital. Hence the development of programmes such as those at
Like all the other things involved with caring for the sick, visiting is a multifaceted problem. There were unexpected problems when unlimited visiting was instituted, which it took time to sort out. By the time this happened I had moved on to the general hospital, but the principles are the same. On the first day we were all prepared for welcoming extra people to occupy the patients. Brilliant, we would have more time to get on with individual treatments.
As the doors opened, a flood of people surged forward to the bedsides of their loved ones. With them arrived shopping bags, wheelers and arms full of gifts. By 10 am. coffees and teas were being drunk from flasks, and by lunch time sandwiches were being enjoyed by patients and visitors alike regardless of diets! A dangerous situation for diabetics, etc. and nurses had no idea whether patients were eating or just hiding problems behind the aura of fruitfulness provided by their families. This trend continued until the last buses were due to depart and those with cars dawdled even longer.
After a few weeks of this type of scenario, patients, staff and visitors were all complaining of fatigue. Patients were exhausted and suffering from constipation and other associated digestive upsets, staff were unable to perform personal care without embarrassing the patients as they explained what they wanted the patients to do to cooperate, and visitors were finding financial implications on a long term basis.
Also needing addressing was where all these people were to sit. Inevitably the beds seemed the obvious place. Plenty of room for two or three. As bed clothes were pulled tight, wounds groaned under the pressure and wound healing was being delayed. Added to all this of course was the added risk of infections carried in unknowingly by the visitors. I will mention MRSA and then say no more.
Again my point is that there is no easy answer to any one problem and sometimes the tug on the heart strings is the lesser of many evils.
In general, I suppose we can’t overlook what things were like at the time. 1950 was a very early post- war situation, and it is always difficult to put oneself in the mind set of an earlier period and what was happening generally to children. Money was short for everyone so food as well as clothing and everything else had to be completly eaten or worn out before it was thrown away or even still passed down to 'little Johnny'. I remember my father saying that if I didn't eat what was before me it would be returned at the next meal. That was no idle threat! 'Make do and mend', was the quote of the day for making clothing last longer, etc.
Drugs then were very minimal and basic (no broad spectrum antibiotics for example) hence lots of fresh air and rest! TB itself was also something that doctors were learning about, and without the appropriate drugs to help in the treatment they were fighting a very difficult battle.
The point Fred made about the staff being young and inexperienced is also valid. Again this doesn't or shouldn't happen today because the training separates the nurses from the wards until they have gained some knowledge. On the other side of the coin nursing is a very practical work and full knowledge can only be gained at the bedside in order that the intangible can become intuitive. We were taught about diseases and what to look for in a patient who were unwell.
Today nurses are taught about health and have some idea if a patient admitted for a cataract operation is at the time of admission developing a further problem. Not to take over the Dr's position but to know when to call for his attention.
Monday, 4 August 2008
This added bit about your later visit to the hospital is also very interesting - it always struck me as curious that such a little place as Thorpe Arch incorporated a children's hospital, a munitions factory, then a prison and the British Library (which I think is still there). I wonder how much of that was due to re-using buildings that already exist.
I was surprised to hear that you had to be quite so assertive about staying with your son when he had his operation - I thought by then it was almost commonplace for parents to be allowed to be with their children, but obviously it all took longer than I thought, or at least did so in some places. I've read quite a lot of stuff on how
I would have liked to be able to 'walk the place' as an adult, as you did, not only lay ghosts – more to conjure up a few, especially as I have such vague memories of the actual physical aspect of the hospital. So I was sorry it wasn't there any more when we finally got around to going (in about 2005, I think). At the same time, I can understand your feelings about obliterating it. A similar hospital at Craig-y-Nos (I've mentioned their blogspot a number of times, since it inspired ours) was housed in a castle, which is now a luxury hotel, and rumoured to have at least one ghost of a child. Presumably new-build houses won’t have any at all.
Sunday, 3 August 2008
It may be of interest to know that between Sept 1969 and January 1973 I served as a young prison officer at the Thorpe Arch prison directly opposite MHH. My middle son David who was born in
I have to say at that time it was a totally different hospital from what I remembered but even so the visiting arrangements were by today's standards still harsh and unfeeling towards both the patient and the parents. After my experiences of MHH both my wife and myself made it quite clear that one of us would be staying with our child throughout and one of us did for almost a week until he was finally discharged.
My return to MHH was with mixed feelings hoping to make some sense of what happened to me there. Of course in 1973 it had changed considerably from what I remembered in 1950 and to be perfectly truthful it didn't hold the terrors that I thought it might. I was allowed to wander the grounds and hospital and as I did so I laid to rest some of the fears that I had. Personally speaking I am glad that the hospital was eventually pulled down and some better use made of the grounds. That may sound ungrateful especially of all the good things that came out of MHH and of the hundreds of children myself and my son included that benefited so greatly from its existence but I don't mean it to. It's just the way I feel.
Saturday, 2 August 2008
Thanks for sharing these memories - it must have been quite difficult getting them down on paper in order, and you're the first one to have done it so frankly! Like Fred, I find they remind me of some negative memories, too, especially of being left at the hospital by my parents. I'd been transferred from a hospital in
I don't get the nightmares you write about, but I was a very fearful child for quite a long time. do remember a lot of harsh treatment from some of the nurses. I still remember how one night a nurse took away the rag doll I slept with to punish me for being naughty - don't remember what I'd done - and gave it to the girl in the next bed. This doll was made for me by my Granny, and I think it was like a safety blanket to a smaller child. I cried and cried till in the end this girl got fed up and gave it back to me for a bit of peace. The nurse came to see whether I'd fallen asleep crying, I suppose, saw me with the doll, and took it away again... That kind of thing seemed like pure malice to me.
However, Fred had these second thoughts after responding to your email, which fit well with what I want to say here: "Maybe it's too easy to judge the MHH nurses by today's standards. Some of their actions would probably have been considered far less shocking fifty years ago, and were probably based on their own childhood experiences. Fred remembers his parents threatening to serve up uneaten food at the next meal time. My own parents' reaction to my pickiness was to take the plate away from me when they'd finished eating: "Oh!, so you don't want any more", till I got so hungry I ate pretty well everything that was put in front of me, with a few exceptions, like slimy mushrooms and tapioca (as I think I've said before). As their contributions to the blog show, many of the nurses were trainees and probably only in their teens with little knowledge of how to deal with awkward, stressed children in an alien environment.
I think the once a fortnight limit on visiting was the rule, actually - as you'll see from the other messages. What really used to bug us, though, was that the visit day would sometimes be postponed a week if it coincided with some apparently arbitrary date, like the 1st Saturday of the month. Then we had to wait three weeks.
I've done a bit of research into the way the rules on visiting changed, as child psychologists became aware of the damage early, sudden separation from parents could do to children. In 1956, under the Labour government of the time, the Ministry of Health set up a committee which took evidence from a huge range of people - doctors and nurses, of course, but also parents of children like us and child psychiatrists. They issued a report in 1959, called the Platt report, discussing the whole thing, and recommending more frequent visiting - though they recommended that it should be carefully managed in long-stay hospitals, where it was also important to create some semblance of a normal life for children, including school and independent play time.
Some of the evidence they considered came from letters in reaction to a series of BBC programmes. Only the scripts are left, and I've been able to see some of them in the BBC's Written Archives. They were broadcast by Woman's Hour, and some were outside broadcasts to village halls, to conduct a sort of panel discussion with local people, a bit like Any Questions nowadays, I suppose. Many ordinary people, but especially doctors and nursing sisters, were against more visiting, which they thought would disturb the ward routine and upset the children when the parents left. But the research showed that children settled better if they saw their parents more - couldn't we just have told them that!
After that, they began to bring in new policies and nowadays, of course, we have daily visiting and parents allowed to stay with their kids. I'm sure these would have created other problems for our parents - my home was in Pontefract, so the journey for my Mum was a long one, too, as she had no car, though I remember kind friends giving her lifts in their cars.
Thursday, 31 July 2008
Hospital antiseptic I remember as ether, but I've always liked the smell, can't say the same for the boiled cabbage but I don't mind the smell of methylated spirits even now. I cannot remember protesting too much against being strapped down in my frame but I do remember, when I first arrived, hoping that they weren't going to strap me down in one of those things.
Yes I have memories of unkindness, sometimes being subjected to mental cruelty but in my case it had the effect of hardening me up, if I kept my head down and didn't make a fuss, withdrawal I suppose, I could get by without becoming the centre of some nurses anger.
Looking back I remember the good times more readily than the bad, maybe my "conditioning" was more effective than Rowland's e.g. I cannot leave food on a plate and will eat most of what is in front of me even if I don't like the taste and maybe I began to believe I was "too big to cry". I suspect Rowland's will was probably more resistant than mine and he remembers the struggle more because of it.
I wonder how Rowland feels about the medical profession today, I have had to return to hospital for major surgery on a couple of occasions, admittedly they don't keep you in quite so long these days, but I had few fears of the surgery and only warm memories of the way I was treated by all the medical staff attending me. Even today I attend outpatient clinics and almost look forward to them, certainly without any trepidation.
Finally I wonder if Rowland had the same disorder I had, Perthes disease. It is a condition affecting the hip joint and my treatment was exactly as described by him down to regular x-rays and hip manipulation. I was completely cured, physically anyway, by my hospital stay. Length of stay was dependent upon how far the joint had worn before diagnosis and how quickly the hip ball joint recovered, in his case considerably quicker than mine. I am not entirely sure complete mobility would have been restored with TB and await someone more knowledgeable to correct me.
Rowland Jagger (a patient in 1950, now living in Spain) raises some issues about the effects of visiting restrictions
I was a patient at
I have been trying to put my thoughts down on paper without sounding too negative. In all honesty I do not feel that that part of my life holds any fond memories for me at all. It was a time of my life that I would prefer to be able to shut out from my memory but I cannot. Now at the age of 64years I can at least look back objectively without feeling aggrieved and troubled.
I remember it as being the unhappiest time of my young life and I am convinced that my life was scarred forever as a direct result of that experience. I remember being very frightened and I cried a lot. I couldn’t understand what was happening. I didn’t even have time to say goodbye to my sisters or grandparents and as my parents weren’t allowed to travel with me in the ambulance I believed for a long time that I had done something wrong and was being punished.
MHH was a small cottage hospital but in reality to a small frightened little boy it didn’t look like one to me. It was alien and scary with the huge hospital grounds set inside dark thickly wooded areas. So far away from my home in
On arrival I remember having all my clothes taken off me including a few small toy lead soldiers that I always carried around with me. (I remember being told not to be a silly boy and to stop crying as I was too big to have toy soldiers at my age).
Forty miles is no great distance to day with almost every body having a car, but in the 1950s my parents, ordinary working class people struggling to bring up three children didn’t have a car. The public transport in those days was poor if non-existent out in the rural areas. The infrequent journey’s they tried to make every fortnight to see me was a long drawn out affair and must have been a serious drain on their tight budget.
I remember clearly the first time I was taken on to the ward; the beds with metal cages and some with strange looking gadgets above which I later learned were pulleys with which to raise the limbs. The noise of children shouting and crying, pulling on the metal bedstead’s jerking their frames up and down to make a banging noise was alien and I was petrified.
This was something I learned to do my self in later weeks when I wanted attention and was frustrated and bored which was often It was if I had arrived in bedlam. The smell was a sickening mixture of hospital antiseptic, boiled cabbage and methylated spirits. The latter I would find out to my horror was used as a treatment for bed sores which I would suffer greatly from. I remember carrying on alarmingly when they first strapped me down on a metal frame all the time being shouted at and told that it was for my own good and not be a silly child. For days I cried myself to sleep pleading for my mother, wondering what it was that I had done so terrible to be sent there. For years afterwards when I was well into my teens, I would frequently have the same recurring nightmare that I remember having that first night. It would always be the same. I can’t breath, I can’t move. My head feels as if it’s going to burst. I’m trapped inside my body and I’m being crushed.
I remember stubbornly refusing to eat any of the food. All I wanted was Mother. The nurses would sometimes get cross and shout at me not to be a silly child and hold my nose whilst forcing food into my mouth. Sometimes, I would gag and be sick on purpose. I soon learned not to do that as any uneaten hospital food was put in front of me for the next meal.
The occasional stinging slap from an overwrought nurse and the threat of having a large tube that they waved in front of me pushed down my throat eventually made me conform. Strangely enough even today I am what my wife calls a very fussy eater.
As far as I can recall there were about twenty other children in total in the ward. Not all were on bed frames. Some were allowed to walk around with callipers on their legs. I was so envious of them.
Some of the nurses I remember as a child were not very nice or understanding, but there were some nice ones and one in particular. She would often sit next to my bed at night time and hold my hand telling me everything was going to be all right. She had lovely red hair I recall and she was very pretty, and smelled just like my mum.
Being strapped to a metal frame, I had to learn quickly to hold my bodily functions often crying in pain. On the occasions when I couldn’t wait and had an accident. I would lay in fear waiting to be found out. The punishment was always the same and even to a seven-year-old was humiliating. The bedclothes would be yanked off the bed, an angry nurse telling everybody watching that you were a dirty boy. A favourite punishment was to have my penis pulled with one hand whilst in the other, the nurse held her scissors over me threatening to cut my jimmy off if I wet the bed one more time.
The boy in the next bed to me was called Lorry I think it was short for
He learned his cunning the hard way and when he had an accident he would throw his stools under someone else’s bed space, invariably mine. Despite that, I remember feeling sorry for him. He was always crying, but I didn’t know why. He used to scream at night times complaining that his legs hurt. When the nurses came to him he cried even more and struggled with them as they rubbed methylated spirits onto his bedsores.
Within a few weeks of being there I myself learned from first hand experience the stinging pain bed of sores, and the skin chaffing that the restraining straps caused on young tender skin. After the first experience of having mentholated spirits rubbed into my bedsores. I tried very hard not to complain but the nurses checked every week and the treatment was always the same.
Bed times were always the worst for me. I recall always crying when I thought of my mum, I missed her so much. Every day seemed like an eternity and even though I’m sure there must have been moments when I wasn’t unhappy, in all honesty I can’t recall them.
I remember vividly the first time my mum and dad visited me at the hospital. Mother now says that it was only two weeks after I had been admitted but I don’t know. To a child it seemed like years. I remember screaming the place down as they left. Mum says now that they could only visit every fortnight, but other children’s mums and dads seemed to visit more frequently than mine. Not that I feel bitter about that now as an adult. They did what they could at the time I’m sure.
We had schooling every morning, not that I was in any frame of mind to learn and as a direct result when I was eventually discharged and went back to school I was hopelessly left behind. Fortunately, I was able to make up some lost time, but I always remember my later schooling days as difficult and demanding.
Days turned into weeks, weeks into months. Lying on a frame on your back strapped down unable to move anything but your head and arms when you don’t feel unwell was a torture devised in hell. To see other people walking around albeit on callipers was to me so unfair. I would struggle and strain against the straps but only until the pain became unbearable then I would just lay there sobbing. I remember after many months been taken for several x-ray’s and seeing several doctors at MHH who tried to make me do all kinds of exercises with my legs, but they wouldn’t do what I wanted them to. I had in my mind a plan that when they eventually did take me off the frame that I would run away.Strange as it may seem, psychologically I must have became used to the life in the hospital because the periods of crying and wanting to go home no longer plagued me.
A couple of weeks before I was discharged I remember being taken off the frame every day for physiotherapy. I still couldn’t move my legs the muscles had wasted so much. I recall screaming in pain as my legs were being manipulated. Thirteen months almost to the date that I had been admitted I was fitted with callipers and discharged. I couldn’t walk with out them. My legs unable to support the weight of my body. The were muscles weak and ineffective through twelve months of inactivity were useless. Nearly six months later after hours of out patient treatment I could walk again unaided.
I ask my Mother today what exactly was wrong with me? What symptoms did I have? What treatment was it I was subjected to? Didn’t you ever feel the need to question what was happening to your seven year old son? The answer is not all that surprising as a strict authoritative demeanor ruled throughout, for this was the approach of the time in the fifties. No one especially parents questioned doctors, complained, or challenged the circumstances at the time. This meant that many children myself included suffered the indignity and damage being in institiutions where parent’s visits were strictly controlled and were they was not involved in any treatment programs.
Please don’t get me wrong, I am pleased that whatever it was that I was suffering from was diagnosed and treated in time. I believe that I was one of the luckier ones. I went on to be able to participate in all kinds of sport successfully. I spent 6 rewarding years in HM Forces and then followed a successful professional career for the next thirty years before being able to retire early. But, I did suffer and still do psychologically. The impact of being removed from my family, seemingly forever, without really understanding why, of living apart in a building labeled a "Children's Hospital", of having significant life altering medical and surgical procedures done without real understanding, and involvement in the "real" world cannot ever be truly measured.I'm now 64, and live permanently abroad in a beautiful part of Spain known locally as Xabia or better known as Javea approx 70 kilometres north of Alicante. I have lived here now for 11 years with my wife Kathleen spending my time gardening, doing D.I.Y. and writing which is my ultimate and untiring passion. We also spend a lot of our time travelling around this beautiful country which we both love trying to absorb as much of its history and culture that we can.
Wednesday, 30 July 2008
On the BBC’s WW2 People’s War site there is a 2005 posting by a John Appleyard, aged 68 at the time of posting. The site content is copyright, but it's legitimate to give a link to it here. John Appleyard (who adopts the site name ‘jontyjon’) was a TB spine patient at Thorpe Arch for six years, leaving in 1945. His posting gives a vivid account of air raids on the munitions factory – which he found thrilling – and of the gas masks in the shape of Disney characters issued to the children. He became so attached to his Mickey Mouse mask that he cried when he had to leave it behind to go home! The full posting is worth reading, by clicking on this link: http://www.bbc.co.uk/ww2peopleswar/stories/74/a5499174.shtml . The whole site is fascinating.
. The whole site is fascinating.
I came upon the posting some years ago, and tried to follow him up, but unfortunately he left no contact details. Do any of you know him, perhaps? You can read his account by clicking on the link.
Sunday, 27 July 2008
I remember the problem of things falling off the bed very well. I was noticing just the other day that I seem to have very quick reflexes for catching things that threaten to roll or fall off somewhere near me. With all this work on the blog, I'm beginning to wonder if I might have developed these at Thorpe Arch. As you say, if something fell off your bed there, unless you could get a walking patient to pick it up for you it might as well have fallen into a bottomless pit, lost for ever. In the end I just got a bit lackadaisical about losing things, which used to drive my mother mad when I got home!
It comes up, too, in Margaret Vicars's posting (8th July) about her efforts to pick things up for other children, once she could walk - even though she couldn't walk very well!
Saturday, 26 July 2008
Andrea Kerr (nee Higgins) was a patient 1958-9, and worked at Thorpe Arch as a chef when it became an old people's home
Andrea rang me after my article appeared in the YEP. This is based on the notes I made during our talk, with some additions Andrea made when I sent her the notes.
Andrea rang me after my article appeared in the YEP. This is based on the notes I made during our talk, with some additions Andrea made when I sent her the notes.
"My auntie told me about your article in the YEP and encouraged me to get in touch.
I was a patient at the
I had to have lots of painful injections of streptomycin. The liquid was very thick and the needles really big, and I was sore from having so many injections, so they’d stuff a hanky in my mouth to stop me screaming with the pain. By the time I left I was like a colander!
I remember we had classes, which were neither here nor there – the same teacher used to deal with all the girls on the ward, aged from 6 to 16. So when I got back to school I was well behind. In those days, they didn’t have the sort of teachers they have now to help you to catch up. All I remember from those classes was that the Swiss flag was the reverse of the Red Cross flag! I wonder whether we had church services – does anyone remember? There was a TV on the ward – a small screen up on an end wall that I couldn’t see.
One thing I wished was that I could find a way to stop toys falling off my bed. Staff wouldn’t pick them up but just threw them away. I remember I had a new doll for Christmas and I dropped her jacket and never got it back again – same thing with jigsaw pieces, all kinds of stuff. There was a cleaner who came most days. She was a lovely lady who was deaf. I used to write her notes to ask her to look for my toys.
I’m also left with a fear of spiders, because one day there was one in my bedpan, and when I screamed about it the nurse tipped it into my bed.
We used to get visited maybe once a week, and at weekends; no visitors were allowed on ward cleaning days. My Gran came often, even though it meant taking three different buses. There was also a railway station about 300 yards down the road, now closed down. One time there were delays to the buses, and my Gran only got to the ward around 7 o’clock, and visiting ended around 8 so she was fairly desperate. My Dad also came, but my Mum needed to stay at home with my
We never set eyes on the boys, though I do remember one night when they searched under our beds because a boy had absconded from the children’s home next door – but he wasn’t there!
Digging down I can remember quite a few things: a sister washing our toe nails ready for the doctors to see; and a cook who was sacked for serving ‘food unfit for human consumption’. One thing she cooked was a sort of pudding made out of minced up vegetables, baked in a tray. I remember my very first meal on the ward: sausage, baked beans and mashed potatoes with gravy. I specially enjoyed breakfast – bacon sandwich was my favourite.
I remember Christmas there. The doctors and nurses used to come round the wards singing carols. My uncle worked for the Thrift stores, and his boss used to supply toys for the Christmas party. One Christmas Eve, one of the nurses got drunk, fell down some stairs and broke her arm. When she came back on duty, she was wearing a pot and a sling, and she’d go past our lockers filling her sling with any sweets we had on show.
I also remember Bonfire Night – we were all wheeled outside through the French doors to watch the fireworks. And once there was a visit from
There was a sort of aviary and one night someone pulled the bars apart and the birds flew away. I was a walking patient by then, it was not long before I left, and I got blamed for doing it, but it wasn’t me.
I don’t remember the names of many people, except one girl called Mary Higgins, who was in the bed opposite mine – because my name was Higgins I suppose.
When I left hospital, there were things I wasn’t allowed to do. I was never allowed to take part in PE or games, in case it would cause another injury. I always wanted to join the police force, but I was excluded as medically unfit. Still, I always managed to earn a living – as a chef. They even suggested I shouldn’t have kids, but I’ve had four. I think we’re survivors, really. I think there are some people who just are survivors, and others who just sit back and wait for people to do things for them. For instance, since I had my stroke, I’ve got back to doing a lot of things.
About 17 years ago, when the hospital had become an old people’s home, I went back to work there as a chef. It went up and down a bit – sometimes it had a blue badge, sometimes it didn’t, depending on how the inspections went. One of the people who had nursed me when I was a child was working there again. I think she may live in Wetherby now, though I don’t remember her name. But I do remember she brought in some photos of how the hospital was, showing how the beds were. They looked quite ramshackle, as if those gates they had to stop you falling out of bed were made of orange boxes.
At the time I was working there, Leeds United used to use the playing field from the children’s home as a training ground, and I think before then it may have been used by the police.
Thursday, 24 July 2008
I spent four years there from 1936 to 1940, having gone there from St. James’s where I spent the best part of a year. I had rheumatism in various forms from the age of two, going on to an attack of acute rheumatic fever. I was six when I went to St. James’s and eleven when I came home.
My memories of Thorpe Arch are still very vivid and I remember many names of the patients and staff, who were kind and who was not, the teachers’ names, the specialists and the three matrons who were there in my time. When I first went there the hospital was for convalescents only. The address was just The Marguerite Home, Thorpe Arch, Yorks. Later this was changed to the one you know.
Later, the place was for adult women who needed longer hospitalisation. I visited an aunt there who had a broken leg, she was there about three months, but I rather enjoyed the trip. There were some changes but the main buildings I knew were still there. We went for a trip around there some years ago and I just couldn’t find it, but I mentioned it to someone who turned out to be a doctor and he said the place was still there but for what purpose I don’t quite know. Some of the patients were there for TB, but some were like me; some with rickets, but a good many had been left crippled by polio.
The matron who was there when I arrived was called Watson. She died there in odd circumstances believed to be suicide. Her Alsatian dog jumped out of her window and fell through a glass roof below which was the baby ward but fortunately missed the children’s cots. We then had Matron Balmer who was a lovely person, but didn’t last long as she got married. Matron Downs came next and she was still there when I left.
There were frequent visits by the committee who ran the hospital, all the country gentry. Mrs Lane Fox came quite regularly. She lived at Bramham Hall with her daughter Felicity who was in a wheelchair.
We had teaching all the time I was there, with a Miss Whitehead. The gardener was Mr Whitehead, no relation. He seemed to do everything besides gardening. He looked after the resident donkey called Hopey, who was kept in a meadow. Sometimes he got used to the music and came near the wards to listen to it.
Sometimes the nurse would play the piano and we would have a sing-song but we also had a radio. Now and again Hopey would get out and always ran to the kitchens and poor Mr Whitehead had to chase after him. As I was leaving he was digging up the tennis court, part of the war effort, I suppose.
Wednesday, 23 July 2008
Sunday, 13 July 2008
Alan Smith-Redshaw's sister talks about the effects on her family of her brother's long stay in hospital
I read your article in the Yorkshire Evening Post, about
Visiting was every 2 weeks, one week Sunday, two weeks later Saturday. I was 11 years old. We would go on the tram to
Children could not go in to the ward, so we played in the long drive and peeped in through the hedge to see Alan. He is now 61 years old, and doing fine. He’s a taxi driver now, though he used to work in engineering until all that disappeared 15 years or so ago.
It must have been awful for my Mum and Dad to leave him there for all that time, only visiting every fortnight. I remember my Mum being terribly upset when they cut off Alan’s lovely curls, she cried nearly all the journey home from the visit.
Friday, 11 July 2008
Thursday, 10 July 2008
A dialogue with Kathleen Ward (nee Forbes, 1945-1950), aged about 6-11: food, school and learning to walk
Eventually the doctor and consultant found out through some sort of test that I didn't have TB Hip, after being on a frame (as we called it) for a few years. I then had an Osteotomy and was in plaster for six months, before being taught how to walk again.
I loved the schooling we got. Our teacher was called Miss Field, and I think Mrs Budd was teacher on the boys ward, and was classed as the Head teacher. They must have given us all the basics and it can’t have been easy with most of us bedfast. The reason I say this is that I was not behind my age group when I got to school after being discharged.
Having read about other patients’ experience with the Dentist, I can verify that I too was petrified of having any treatment and the only way I would have any teeth extracted was by general anaesthetic.
My memories of food aren't too good, for instance I hated porridge, rolled herrings (which we called donkeys ears) and tapioca (frog spawn). Occasionally you would get a nurse that would bring it back the following meal trying to make us eat it. You can imagine the outcome! I can’t face any of those foods to this day. I suppose many a child in that day and age would have given their all for any food.
However most of the nurses were kind. I did see odd acts of cruelty to some patients if they soiled the bed etc. But myself personally didn't suffer any of this.
Visiting was 2pm to 4pm once a fortnight on a Saturday, and of course no ward phones etc. So letter writing was very important. My family used to bring me envelopes ready stamped and addressed.
I do remember radio stars visiting us, also having film shows at times.
On the whole, my years in Thorpe Arch were happy and I really missed my friends when I went home, until I made new ones.
- Bonfire night. They used to build a big one.
- Christmas - the nurses coming round carol singing on the ward Christmas morning. Father Christmas visiting. Sometimes the nurses would sneak on the ward to show us their dresses before going to the staff dance.
- Lady Baden Powell coming to the hospital early one morning for the guides to sign a scroll. Can’t quite remember what it was for, but I know it was very important at the time. Our patrols were called Swallow and Bullfinch.
- Miss Field bringing each of us a Christmas tree to stand on our lockers and making our own decorations. Of course the ward had a large tree.
- The forces donating a rubber dinghy to the hospital and those who were learning to walk at the time, sitting on the side and using it as a paddling pool.
- Trying to play cricket on crutches!
Jane follows up Kathleen’s first message
You and I must have been there at the same time - I was there from 1944-48. I suppose remembering each other would depend on how old we were - I was 4 in 1944 (my age goes with the year, which makes it too easy to remember!).
I think we all remember Miss Field - and the 'boys' seem to have equally good memories of their Miss Budd. In fact, when you read all their comments, you realise what a terrific job they did, because none of us seems to remember being behind at school. I do remember her trying hard to make us talk 'posh' - with not much success! She'd start off the morning with a little rhyme, all pronounced very poshly, for us to repeat: "'Good morning, good morning, I wanted to know if I could see a Mrs Snow.' 'Mrs Snow, Mrs Snow, I don't know a Mrs Snow'". Then we'd all chorus back with our
Your memories about the food (and see also Margaret Vicars’s posting, yesterday) really jogged mine. I also hated the tapioca, and haven't eaten it to this day. I was lucky there, because my Dad also hated it, having been given it at boarding school when he was little, so Mum didn't dare cook it for us! I also hated leeks - same reason I think, they were very slimy the way they cooked them and I just couldn't swallow them down. I suppose that was the problem with the tapioca too! It was all so much worse when they came round for a second time. Then a friend served up leeks one day, cooked a different way, and I really like them now! But when I got home from Thorpe Arch, anything strange that had a bit of a slimy texture I wouldn’t touch – all kinds of things I love now, like mushrooms for instance. My Mum, bless her heart, wanted to make up for lost time and feed me up, and she found my 'pickyness' very upsetting.
Something that crops up really often (it’s also in Margaret’s posting yesterday) and that I'd really like to explore a bit more with you all, is this whole business of learning to walk again. It hit me when I had a hip replacement, about 10 years ago, and realised that was the third time I'd learned to walk, and I really started to think about it, and what difference it might have made to me in later life.
I'd also be interested to know whether you found that your experience affected your ability to do physical things - gym at school? sporty things afterwards? I was a bit of a duffer at gym - I think I was afraid of falling, perhaps because when I left Thorpe Arch I had to wear a sort of leather and steel corset (a spika) that went from my chest to the top of my right leg and down to the knee on my left leg, and I went to my first primary school like that. So when I fell down, I couldn't pick myself up.
…and Kathleen replies
I don’t remember Miss Field’s verse but I do remember her wanting us to talk posh. However as you say they did a great job. I was born in 1938 so I was a bit older than you. When I got out of hospital I wasn’t allowed to do any P E or swimming - no physical exercises at all.
Also when I had the osteotomy operation I didn’t have a fixed hip, and it caused me to have a three inch shortening of my right hip. After another six months they did an operation on my left, so called ‘good’ leg to stop the growth, for my right hip to catch up. I was 11yrs old at the time and they put staples in my knee on the left leg, and I had a 3in lift on my shoe. When I was taught to walk and went home this was lower as my right leg caught up. Then I had to go in Pinderfields in
I was always frightened of falling. It’s amazing how eventually you learned how to put up with these things and get on with life. To this day I can’t swim, never had the courage by the time I had been given permission from specialist.
However as the years went on I got married had four lovely healthy sons who married and had families so have lots of lovely grandchildren.
I also had a replacement hip in 1984. I think that’s the best part of my body now, most joints have arthriitis in them and walking is very difficult. In my home outside my family push me around in a wheelchair. Neither myself nor my husband can drive so family have the burden. They are my rocks. Of course they always have a babysitter handy and we all love each other to bits, so I have my uses.
Like you, I too was told to lead as normal a life as possible. Can’t really say why I wasn’t allowed to do sports etc. Parents and doctors in those days just expected you to take their word for it that it wasn’t good for you. The only explanation I have come up with is that the 3 inch lift on my shoe would have made it impossible for me to wear plimsols.
However even when I had my hip replacement I didn’t get the physio the other patients did, just gentle exercises like feet up and down, tightening knee muscles etc., no leg lifting. My consultant just said “you will get them moving in your own time”, and of course he was right.
Having a family to look after you get on with it and find ways round doing things, but it’s been a lot of fun along the way.
On the whole I don’t feel as if I have missed out on anything in life and I really think Thorpe Arch days helped to give me patience and take one day at a time.